Fear of Being Seen in a Wheelchair – from my journal 2019

(written 18 May 2019 – since then, I have embraced all the tools to get about, especially my new mobility scooter which I will write about another time). I’m beginning to let go of old expectations. Old beliefs. Were they even mine to begin with or were they ingrained from societal beliefs? I’m talking about…

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How things can change in a year – from feeling hopeless to limitless

How things can change in a year! This time last year I (for the first time) felt a sense of hopelessness and anger towards having CMT disease and how I felt I couldn’t fulfill my potential in life. This disability was making me so tired, fatigue like I’d never known. The condition was progressing (as…

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I’ve been using my disability as an excuse

I’ve just realised I have been using my disability as an excuse – because for me it’s an easy excuse – to stay safe, play small, and it means I don’t have to work on what is actually stopping me from experiencing life the way I want to. All it took was 5 minutes of…

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Patience – My Word for 2020

Something that has been coming up for me lately is this word “PATIENCE”. First I heard tennis superstar Novak Djokovic talk of if he could tell his younger self some words of wisdom it would be presence and PATIENCE. Then I watched a Youtube video with and inspirational athlete (whom has Charcot Marie Tooth Disease…

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